Links to Resources, Organizations and Supports
- Guardianship Contacts
- Glossary of Terms
- 2022 Guardianship Program Report
- The NYSARC Trust Services – https://www.nysarctrustservices.org
- Medical Orders for Life Sustaining Treatment– https://molst.org
- MOLST Legal Requirements Checklist for People with Developmental Disabilities– https://molst.org/wp-content/uploads/2020/03/molst-checklist-opwdd.pdf
- Health Care Decisions Act (HCDA 17-B) and MOLST https://opwdd.ny.gov/providers/health-care-decisions
- Health Care Decisions Act Legislation- https://codes.findlaw.com/ny/surrogates-court-procedure-act/scp-sect-1750-b.html
- SCPA Health Care Decisions Act -MHLS Contact List by County https://www.nycourts.gov/ad3/mhls/MHLS%20contacts%20listing%20by%20county%204-28.pdf
- How to begin the process of petitioning the Surrogate’s Court for Article 17-A Guardianship of Person and/or Property https://nycourts.gov/courthelp/Guardianship/starting17A.shtml
- New York Courts.Gov: Forms for Surrogate’s Court http://ww2.nycourts.gov/forms/surrogates/guardianship.shtml
- New York Courts – NYS Unified Court System: Guardianship of an Incapacitated Person https://nycourts.gov/courthelp/Guardianship/AIP.shtml
- National Guardianship Association (NGA)– https://www.guardianship.org/
- Supported Decision-Making New York (SDMNY) – https://sdmny.org/
- National Resource Center for Supported Decision-Making (NRCSD) http://supporteddecisionmaking.org/education
- Surrogate Decision-Making Committee Program (SDMC) https://www.justicecenter.ny.gov/SDMC
- SDMC Program Handbook for Volunteers Panel members https://www.justicecenter.ny.gov/system/files/documents/2021/08/sdmc-vpm-handbook-8.23.21.pdf
- Family Health Care Decisions Act Resource Center (FHCDA) https://nysba.org/fhcda-resource-center/
- Compassion and Support https://compassionandsupport.org
- The American Bar Association (ABA) Commission on Law and Aging (ABACLA) https://www.americanbar.org/groups/law_aging/
- Guardianship Assistance Network (GAN) http://ww2.nycourts.gov/ip/gan/index.shtml
- Project Guardianship – https://projectguardianship.org
- New York State Department of Health https;//www.health.state.ny.us
- Health Care Proxy (HCP) (https://www.health.ny.gov/community/advance_care_planning/
- Social Security – https://www.ssa.gov/
- Social Security Publications https://www.ssa.gov/pubs/
- Supplemental Security Income (SSI)– https://www.ssa.gov/benefits/ssi/
- Social Security Forms – https://www.ssa.gov/forms/
- Medicare – https://www.ssa.gov/benefits/medicare/
- Article 17-A Surrogates Court Procedure Act (SCPA)-Guardianship of persons with Intellectual and developmental disabilities. Chapter 59-A https://www.nysenate.gov/legislation/laws/SCP/A17-A
- Article 17-A SCPA https://nycourts.gov/courthelp/Guardianship/17A.shtml
- Consumer Financial Protection Bureau (CFPB) – https://www.consumerfinance.gov.
- Consumer Financial Protection Bureau – Know your Rights & Protections with Medical Bills and Collections https://www.consumerfinance.gov/about-us/blog/know-your-rights-and-protections-when-it-comes-to-medical-bills-and-collections/
- Disability Rights New York – https://www.drny.org/
- Guardian and Fiduciary Services https://www.nycourts.gov/ip/gfs/
- Guardianship Assistance Network – http://ww2.nycourts.gov/ip/gan/index.shtml
- Special Needs Financial Planning – https://specialneedsplanning.com
- Special Needs Letter of Intent https://info.specialneedsplanning.com/en-us/parents-guide-to-the- special-needs-letter-of-intent
- A Consumer’s Guide to Planning a Funeral-Department of Health (DOH) https://www.health.ny.gov/publications/0704/
- Before Prepaying for a Funeral, Know Your Rights (DOH) https://www.health.ny.gov/publications/0703.pdf
- A Guide to Funeral and Burial Options in New York https://www.citybarjusticecenter.org/wp-content/uploads/2016/09/Guide-Funeral-Burial-Options-in-NY-ENGLISH.pdf
- National Alliance on Mental Illness – NAMI New York State https://www.naminys.org/mental-health-support/navigating-details/future-care-planning
- Articles on Guardianship
- https://www.albanylaw.edu/government-law-center/guardianship-adults-developmental-disabilities-new-york
- https://info.specialneedsplanning.com/10-faqs-about-guardianship-of-adults-with-disabilities (Massachusetts)
- https://conaelderlaw.com/the-legal-nuances-of-scpa-article-17-a-guardianships/
- https://www.elderlawanswers.com/new-yorker-article-highlights-abuses-in-the-guardianship-system-16381
- https://www.nytimes.com/2018/12/07/nyregion/court-appointed-guardianship-like-prison.html
- https://stowellassociates.com/how-to-get-guardianship-of-parent-with-dementia/
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
